EVERYONE EAT AT CHILI'S MONDAY SEPTEMBER 28.......ALL PROCEEDS WILL GO TO ST. JUDE RESEARCH HOSPITAL IN HOPES OF FINDING CURES FOR PEDIATRIC CANCER.......
PLEASE GO EAT.......
I am sorry to inform everyone with the news of Maya's passing. Yesterday, things changed so quickly. Her sodium levels were low which caused her to have seizures. We kept trying to correct it but it seemed that it was not holding her. We decided to stop trying and shut off the monitors and enjoy our moments with her. At this point her oxygen level had began to decrease. We sat there for hours and hours as she gasped for breaths. She looked comfortable, pain free. She continued the morphine drip for pain and was given a few medications to help prevent seizures. It was at the point where we wanted her to go in peace. We were in the room staring at each other as we waited and waited for her to go. She still wanted to fight. This morning she did not lose her battle to cancer. She stuck cancer right through and held her head high! She was in the arms of many loved ones. She passed away at 8:40 in the morning. She slept right through. Services will be held on Wed. We will repost for details. Thank you so much for your support. firstname.lastname@example.org email us suggestions as we start our celebration of her life.
It always strikes as a shock that all can change in the matter of seconds. In our case, just one moment.Llimaya was hospitalized for the first time on November 2nd, 2008 for a tumor in her brain. It is located in her right cerebellum ( the part of your brain that controls the function of your movement). The tumor affected her central nervous system causing damages to some of the abilities she used during her everyday life. They placed her on a steroid to help reduce the swelling of her brain. Thursday November 6th, 2008 there was a surgical goal for the benefit of this severe scare. The Neurosurgeons were performing a biopsy and were in attempt to remove enough of the tissue from the tumor to release pressure off of the brain. The surgical goal was met and they were able to remove enough of the tumor to keep her safe until further treatment. Although, it was not a total resection, it was enough to buy time for us to enjoy. The diagnosis was ATRT, a highly malignant tumor that appears in pediatrics. She was discharged and able to go home after the surgery. She enjoyed being home with her family and made use of her time with DORA THE EXPLORER! We returned prepared for our journey and our fight. She has multiple sites. The more sites the harder to treat. She has about 3 tumors that you could measure and other what appears to look like a spray painted coating of tumor cells that could actually form a solid mass. Cancer will be administered through her port a cath (central line), double lumen (central line), and ommaya reservoir ( catheter in the brain that lets chemo flow through your cerebro spinal fluid).PLEASE PLEASE PLEASE PRAY FOR THIS FAMILY OR JOIN CAREPAGES AND LEAVE HER A MESSAGE..............http://www.carepages.com/carepages/QueenLlimaya
Alexa is watching over all of us from Heaven this morning. She went home to be be with Jesus this morning at 4:00 a.m.
God's blessings and peace be on all of us as Alexa and all of us start a whole new journey.
I know her words, if we could hear them, would be, "Thanks for loving me. Don't worry. I'm good. I found Grammie, Pop Pop, Pa and T.C. I will watch over all of you. I love you more than you'll ever know."
We can all rest easy knowing that Alexa will forever be protected by Jesus and a host of family members that have gone on before us.
Love to you all,
Amanda, Abby, Ethan, Wendy, Warren and special love from Alexa
I know I am late with this post but this wonderful family could use some encouraging words. Please go to her site http://www.caringbridge.org/visit/alexabrown
Tuesday morning around 11:30 am CST, while Ken was giving Caleb a bath, Caleb drew his last breath on earth and took his first breath in heaven. At that time, Kim was in surgery due to complications from her earlier surgery. She is resting now at Integris Baptist Hospital and is expected to have a full recovery. The Spady family is at peace. They are grateful that everything the tumor took from Caleb has now been restored to him.
A friend of Kim’s wrote a song that brought her comfort. Its words describe the hope t
hat has sustained Caleb and his family through these difficult days.
"I have fought the good fight, I have finished the race, I have kept the faith." ~ 2 Timothy 4:7
Brianna passed away at 6:12 this morning. She finished the race strong….living up to the meaning of her name and her cross country motto. She was surrounded by her loving sister, parents, and step-parents.
We felt from the day of diagnosis that Brianna was here to serve a bigger purpose, especially if God chose her to bear such a heavy cross. If a child cannot live out their dreams and God chooses to call them home, we must know His plan is perfect. She always put others first and even though I told her it is o.k. to be selfish for once in her life…to let go if she wants to be out of pain, she held strong for everyone else. She held strong and allowed her family and friends to come share their love with her and she shared her love and so much more. Though she could not speak, could not move, and struggled to open her eyes for even a second, she would gather the strength to let us know how much she loved us. She wanted to bless us with a few more squeezes of the hands, a few more words, and to show us her beautiful blue eyes a few more times.
Though we don’t know all the plans He has for her, we do know she accomplished more in 13 years than most people do in a lifetime. She touched the hearts and inspired so many people, including her parents!
Because of Brianna, family relationships have healed, parents and children cherish each other like never before, and people grew in faith. Brianna would want nothing more than for people to be happy, but we hope she served a greater purpose by displaying the hope, faith and love which inspires people to seek out the little miracles and many blessings in every day. She did accomplish her primary goal in life. Especially as Matt, Maria, Bob and I were able to give her what she always wanted…peace in her family. She was not going to leave until we reconciled our relationships. Only hours after she heard it from everyone, she began to let go and she was lifted up!
We decided if she cannot live out her own dreams (hairdresser, chef, artist, marriage, kids) we would make at least one dream come true, which was to have her family together with her and at peace.
Brianna is lifted up, healed in mind, body, and spirit. She is donning beautiful angel wings, and I imagine is being tugged at by two little boys who are asking her to play with them. God Bless Brianna…her Irish eyes are smiling down on us!
May the road rise to meet you.
May the wind be always at your back.
May the sun shine warm upon your face.
May the rains fall soft upon your fields.
And until we meet again,
May God hold you in the hollow of His hand.
Dance as though no one is watching you,
Love as though you have never loved before,
Sing as though no one can hear you,
Live as though heaven is on earth.
PLEASE PRAY FOR THESE FAMILIES..............
Maryn Nicole Cella, born on October 20th 2005 was diagnosed with an inoperable brain tumor in June, 2009. The name of this tumor is "Diffuse Pontine Glioma". Maryn's parents were told that she would have 9-12 months of life even with radiation therapy.
Maryn and her parents are moving mountains to find a miracle and save their sweet angel. They are blessed with a community of generous neighbors, family members and friends willing to pitch in and help in this time of need - and they are thankful to everyone!
Maryn is an incredibly brave child. Each day she goes to radiation therapy, she has a smile on her face and enters the radiation room to be sedated with little or no fear. We are amazed at her perseverance and willingness to think of others even when at the hospital.
Maryn epitomizes what we should all try to be with the way she is caring for others and putting others concerns first.
Maryn loves little stuffed animal toys and to play with her four sisters. Maryn also likes to watch her favorite cartoon called, "Calliou". Maryn loves the color pink and is always wanting to color in her coloring books.
Maryn and her Mother have gone "RAW" in hopes of not feeding this terrible tumor. Please go to this site and donate. There is also a link to her mother's blog which gives up to date information on how Maryn is doing.
Saturday, July 11, 2009 6:32 PM, CDTWe truly thought that the worst of Avalannas illness was behind us. We had an MRI yesterday and we are heartbroken. We woke up yesterday morning, hoping and praying for a clear MRI. We felt that if everything looked good yesterday, we would be fine forever. The MRI was bad - Avalannas cancer is back - in the brain. We are devastated. The doctors are surprised and so saddened as Avalanna looks and acts fabulous.
Monday, July 13, 2009 8:16 PM, CDTWe had many discussions / meetings in Boston today - each one more difficult than the one previous to it. We are now waiting until Wednesday to do the further tests and by Friday, we should have some plan in place.
Monday June 29th began like every other day, and ended like one we could have never imagined. Our daughter Kate was taken to the dr. for tremors in her right hand. We proceeded to Phoenix Childrens Hospital for a stat CT of her head. At 5:30 I, Holly, Kate's mom, was taken into a room alone and told Kate had a massive tumor on the basil ganglia portion of her brain. I called her dad and our journey has begun. One we never would have chose to be a part of, but was chosen for us, and our sweet Kate. She is now in the Phoneix Childrens ICU awaiting tests to determine what it is and how far progressed. Please, our dear daughter needs your prayers, as do we, Aaron, Holly, Olivia and Will.
Sunday, July 5, 2009 9:44 PM, MST
Do you know those days where your kids are endlessly calling "mommy"? I have had many of those in the past. My kids are 6 (she will be 7 in 2 weeks), 5 and 4. There were many times I would say "okay no one can call me mommy for 10 minutes, I just need quiet!". How many times did I complain about how it seemed like they were always pooping and I was always wiping. How I loved those days where I could lazily stay in my pjs and not wear any makeup. One word can change all of that. Cancer. Now I beg for my daughter to say mommy, just once, just for something for me to hang onto. I don't care if she screams it, slurs it, anything, just say mommy. Kate finally pooped today, in the bed (of which I was sharing with her). I was so excited to clean her up. She pooped! I kept telling her how proud I was of her. Now I rejoice that she poops, the surgery didn't effect that. As far as pajamas go, people here in the PICU might believe that it's possible I don't own any clothes. I would love to get out of pajamas. Just don't feel the need most days. Things change quickly and forever. We can never go back. We can never again be pre-cancer days. Our lives are forever altered. Just pray we can have post cancer days. Lives after God's healing. I want it so badly for my baby. So badly for me. So badly for Aaron. So badly for Olivia and Will.Not sure what tomorrow holds. Possibly another MRI, I hope not. They are going to do another one to make sure the bleeding has stopped and see if the swelling has gone down.. (at least that is what I understood, but I don't hear a lot these days). If she has the MRI again that means more sedation and more intubation. AHHH! Please pray for Tuesday, I am absolutely dreading getting the pathology report back. I know most would think at least then you can move forward, come up with a plan. But the word, the diagnosis, one more layer of innocence torn away. Then it will be studying and hearing facts and statistics and prognoses. I don't want to.Kate is crying. I need to help her. She is trying to say a word, but can't pronounce it. Help us God. Help my daughter! Heal her body, every single cell. Preserve her spirit. Help her fight. Give her rest.
PLEASE JOIN THIS FAMILY IN PRAYER AS THEY AWAIT THE PATHOLOGY RESULTS FOR THEIR DAUGHTER. ALSO PLEASE PRAY THAT SHE REGAINS ALL HER ABILITIES.....HER WEBSITE IS TO THE RIGHT....
PLEASE WATCH THIS VIDEO OF KATE'S PARENTS ASKING FOR SUPPORT AND PRAYERS FOR THEIR LITTLE GIRL........
THIS MOTHER AMAZING ME, PLEASE GO TO RAVYN'S WEBSITE AND LEAVE THEM SOME ENCOURAGING WORDS..........................
Zachary will be starting radiation and chemotherap
They told us the side affects should not stop him from swimming and playing ball. He was very excited to know that he will be able to continue playing sports. As anyone that knows Zac, knows that sports are very important to him.
We would like to thank everyone for their support and help through this hard time in our life. With your thoughts and prayers and Zac's awesome positive attitude we will get through this! We know the odds, but that doesn't matter to us. We know in our hearts that Zac will win. He is too special not to. Even as bad as he knows he has it - he continues to be the same giving and caring little boy he has always been. Keep us in your prayers.
We found out we are headed to St Louis on Thursday the 19th at 8:00 a.m. We will be getting ready for his treatments. We should be home Thursday afternoon. The treatments will begin either Monday or Tuesday.
ZAC IS LOOSING HIS BATTLE WITH THIS AWFUL BRIAN TUMOR. HE LIKELY HAS DAYS LEFT ON THIS EARTH PLEASE READ THE LATEST UPDATES:
Thursday, June 18, 2009 7:50 AM, CDT
Tuesday, June 16, 2009 8:45 PM, CDT
Tuesday, June 16, 2009 10:02 AM, CDT
PLEASE GO TO HIS WEBSITE AND LEAVE SOME ENCOURAGING WORDS FOR HIS FAMILY!!!!!!!! HIS LINK IS TO THE RIGHT!!