Sunday, September 27, 2009

Eat at Chili's...........



Monday, August 31, 2009

Urgent Prayers for Lucas Nelson

This gorgeous little boy was diagnosed two months ago with ATRT. He had one tumor in his spine. He has been given high dose chemo at Primary Childrens Hospital. When they did an MRI things looked good, the tumor was responding. Then all of the sudden he seemed to be in pain. Another MRI was preformed two weeks later and the cancer had spread throughout his spine and into his brain. Lucas was sent home.

This is the latest post..

Lucas slipped into a Coma sometime in the afternoon yesterday, Sunday, as he was being held by loved ones. Our hospice nurse came out last night to confirm his unresponsive state as a Coma. We are grateful to all who have come to visit and as always to all those who have been Angels to us throughout Lucas' struggle. Our faith is strong, but our hearts are broken. We feel a calm assurance that Lucas will be fine and soon will be with his Father in Heaven and his Savior. We lovingly and respectfully ask that visits be limited to immediate family and please understand that we would love to visit with everyone, but our time with Lucas seems limited. We appreciate your continued prayers for our family as it has given us much strength and support. I wish we could give more personal responses to all of your comments and acts of kindness, please take this as our way of saying thank you from the bottom of our hearts.
Lucas is a very special boy sent to unlock the love in people's hearts and teach us lessons we might not otherwise learn. It seems his mission is drawing to a close. We love you our friends. Thank you.
Please go to this site and leave some messages....

Sunday, August 23, 2009

Angel Llimaya...................

Forever in our hearts

Posted Aug 17, 2009 4:57pm

I am sorry to inform everyone with the news of Maya's passing. Yesterday, things changed so quickly. Her sodium levels were low which caused her to have seizures. We kept trying to correct it but it seemed that it was not holding her. We decided to stop trying and shut off the monitors and enjoy our moments with her. At this point her oxygen level had began to decrease. We sat there for hours and hours as she gasped for breaths. She looked comfortable, pain free. She continued the morphine drip for pain and was given a few medications to help prevent seizures. It was at the point where we wanted her to go in peace. We were in the room staring at each other as we waited and waited for her to go. She still wanted to fight. This morning she did not lose her battle to cancer. She stuck cancer right through and held her head high! She was in the arms of many loved ones. She passed away at 8:40 in the morning. She slept right through. Services will be held on Wed. We will repost for details. Thank you so much for your support. email us suggestions as we start our celebration of her life.

Her Bio...............

It always strikes as a shock that all can change in the matter of seconds. In our case, just one moment.Llimaya was hospitalized for the first time on November 2nd, 2008 for a tumor in her brain. It is located in her right cerebellum ( the part of your brain that controls the function of your movement). The tumor affected her central nervous system causing damages to some of the abilities she used during her everyday life. They placed her on a steroid to help reduce the swelling of her brain. Thursday November 6th, 2008 there was a surgical goal for the benefit of this severe scare. The Neurosurgeons were performing a biopsy and were in attempt to remove enough of the tissue from the tumor to release pressure off of the brain. The surgical goal was met and they were able to remove enough of the tumor to keep her safe until further treatment. Although, it was not a total resection, it was enough to buy time for us to enjoy. The diagnosis was ATRT, a highly malignant tumor that appears in pediatrics. She was discharged and able to go home after the surgery. She enjoyed being home with her family and made use of her time with DORA THE EXPLORER! We returned prepared for our journey and our fight. She has multiple sites. The more sites the harder to treat. She has about 3 tumors that you could measure and other what appears to look like a spray painted coating of tumor cells that could actually form a solid mass. Cancer will be administered through her port a cath (central line), double lumen (central line), and ommaya reservoir ( catheter in the brain that lets chemo flow through your cerebro spinal fluid).


Tuesday, August 11, 2009

Angel Alexa Brown................

Thursday, August 6, 2009 5:58 AM, CDT

Family, loved ones, friends and those who have prayed so faithfully for Alexa.

Alexa is watching over all of us from Heaven this morning. She went home to be be with Jesus this morning at 4:00 a.m.

God's blessings and peace be on all of us as Alexa and all of us start a whole new journey.

I know her words, if we could hear them, would be, "Thanks for loving me. Don't worry. I'm good. I found Grammie, Pop Pop, Pa and T.C. I will watch over all of you. I love you more than you'll ever know."

We can all rest easy knowing that Alexa will forever be protected by Jesus and a host of family members that have gone on before us.

Love to you all,

Amanda, Abby, Ethan, Wendy, Warren and special love from Alexa

I know I am late with this post but this wonderful family could use some encouraging words. Please go to her site

Tuesday, July 28, 2009

2 New Angels................One Deadly Tumor DIPG!!!!!!!!!

Caleb Spady.....................

First Breath in Heaven

Posted Jul 22, 2009 10:23am

Tuesday morning around 11:30 am CST, while Ken was giving Caleb a bath, Caleb drew his last breath on earth and took his first breath in heaven. At that time, Kim was in surgery due to complications from her earlier surgery. She is resting now at Integris Baptist Hospital and is expected to have a full recovery. The Spady family is at peace. They are grateful that everything the tumor took from Caleb has now been restored to him.

A friend of Kim’s wrote a song that brought her comfort. Its words describe the hope t

hat has sustained Caleb and his family through these difficult days.

Though He should slay me, I'll trust in Him.
His way is never wrong.
In darkness I will praise His name.
He is my Strength and Song.

For He knows my fiery trial.
He knows the way I take.
His glory shall be seen,
And He makes no mistake.

God sees my ways and counts my steps.
He hears my silent cry.
My heart is fixed; I trust in Him.
I need not ask Him why.

My faith and hope are in the Lord,
My Refuge and High Tower.
In quietness and confidence
Shall be my strength this hour.

For He knows my fiery trial.
He knows the way I take.
His glory shall be seen,
And He makes no mistake.

Brianna Sharp........................

She Finished Strong!!

Posted Jul 25, 2009 8:47am

"I have fought the good fight, I have finished the race, I have kept the faith." ~ 2 Timothy 4:7

Brianna passed away at 6:12 this morning. She finished the race strong….living up to the meaning of her name and her cross country motto. She was surrounded by her loving sister, parents, and step-parents.

We felt from the day of diagnosis that Brianna was here to serve a bigger purpose, especially if God chose her to bear such a heavy cross. If a child cannot live out their dreams and God chooses to call them home, we must know His plan is perfect. She always put others first and even though I told her it is o.k. to be selfish for once in her life…to let go if she wants to be out of pain, she held strong for everyone else. She held strong and allowed her family and friends to come share their love with her and she shared her love and so much more. Though she could not speak, could not move, and struggled to open her eyes for even a second, she would gather the strength to let us know how much she loved us. She wanted to bless us with a few more squeezes of the hands, a few more words, and to show us her beautiful blue eyes a few more times.

Though we don’t know all the plans He has for her, we do know she accomplished more in 13 years than most people do in a lifetime. She touched the hearts and inspired so many people, including her parents!

Because of Brianna, family relationships have healed, parents and children cherish each other like never before, and people grew in faith. Brianna would want nothing more than for people to be happy, but we hope she served a greater purpose by displaying the hope, faith and love which inspires people to seek out the little miracles and many blessings in every day. She did accomplish her primary goal in life. Especially as Matt, Maria, Bob and I were able to give her what she always wanted…peace in her family. She was not going to leave until we reconciled our relationships. Only hours after she heard it from everyone, she began to let go and she was lifted up!

We decided if she cannot live out her own dreams (hairdresser, chef, artist, marriage, kids) we would make at least one dream come true, which was to have her family together with her and at peace.
Brianna is lifted up, healed in mind, body, and spirit. She is donning beautiful angel wings, and I imagine is being tugged at by two little boys who are asking her to play with them. God Bless Brianna…her Irish eyes are smiling down on us!

May the road rise to meet you.
May the wind be always at your back.
May the sun shine warm upon your face.
May the rains fall soft upon your fields.
And until we meet again,
May God hold you in the hollow of His hand.

Dance as though no one is watching you,
Love as though you have never loved before,
Sing as though no one can hear you,
Live as though heaven is on earth.


Tuesday, July 21, 2009

Update on Half of the Warriors.....

Alexa Brown continues to hang on and fight for this last few days of her life. Her family is thankful for each extra day they are blessed with. Please pay for a easy transition to Heaven for her.

Alexis Agin continues to do well!! She is diagnosed with DIPG and has already beaten the odds with how well she is doing. She is do for a MRI soon so please pray. Visit her site, her Father has a profound way with words...

Alyssa Dennewitz is doing amazing! Last MRI, in May CLEAR!!! Her mother has a really strong post on her site right now go read it..

Amber Veale is struggling with her chemo and in and out of the hospital.

Angelica Hurley had a stable MRI in May and now only has to scan every 6 months...

Annette Maxey is struggling to build back up her body and chemo has been delayed.

Ava Beth has done extremely well with her bone marrow rescues..

Avalanna Routh has RELAPSED WITH FEW OPTIONS LEFT.. Her family is obviously heartbroken and she is their only child.

Avery Gallagher is enjoying life at home.

Bishop Mikaelian just got back from her Make A Wish trip and is due for an MRI this week, prayers needed.

Brianna Moore has been having very strong seizures and though the recent MRI was Clear they are still worry some. She has been doing pool therapy and loves it.

Brook Johnson is well a miracle. She has survived relapsed ATRT and is home enjoying life and living cancer FREE...

Caden Safer is doing well and has started on Homeopathic medicine to try and rid is body of his cancer.

Caitie Army is struggling with her chemo, prayers please.

Caleb Gulizia had his MRI/MRA on July 7 no results yet.

Carson Leslie has been accepted at St. Jude for a trial medicine after his family was told there was nothing left for him.

Clay Dixon has an MRI coming up and has been experiencing some right sided numbness of his face please pray.

Cole Carpenter is considered cancer free. He just had a surgery to remove what was scar tissue!!!

Darcy Cassidy is still in the middle of intense treatments but seems to be handling them well.

Dasia Atkinson is a MIRACLE and has completely beaten the odds with DIPG. Her tumor continues to be STABLE.

Delaney Starcher is scheduled for her MRI on the 23rd. All the prayers would be helpful as she fights this terminal tumor.

Emerson Crane his last MRI showed a decrease in size of tumor!!! YEA!!!

Evan Pertile has MRI's today. Please pray for clear scans so he can go home..

Gianna Gillian has been taken off of intravenous feeds and has started eating on her own.

Grant Tatro just had clear SCANS!!!

Grayson Anderson just had surgery and has had to go 7 days with no food.. Awful.

Hailey Ann Trainer is in Florida receiving Proton Beam Radiation. She is doing extremely well and her whole family is there with her.

Isaac Chatfield is in the middle of his chemo.

Jake Dambrauskas the miracle boy is struggling with his liver functions. He has become jaundice and doctors are scrambling to try and fix it.

Joe Slater is doing so well they just took his central line out!!

Jonathan Mullis is in the middle of his chemo.

Julia Pinotti just got a STABLE SCAN......

Justin Hutchins is in a hospice type hospital and sadly declining.

Sunday, July 19, 2009

Meet Maryn..............

Maryn Nicole Cella, born on October 20th 2005 was diagnosed with an inoperable brain tumor in June, 2009. The name of this tumor is "Diffuse Pontine Glioma". Maryn's parents were told that she would have 9-12 months of life even with radiation therapy.

Maryn and her parents are moving mountains to find a miracle and save their sweet angel. They are blessed with a community of generous neighbors, family members and friends willing to pitch in and help in this time of need - and they are thankful to everyone!

Maryn is an incredibly brave child. Each day she goes to radiation therapy, she has a smile on her face and enters the radiation room to be sedated with little or no fear. We are amazed at her perseverance and willingness to think of others even when at the hospital.

Maryn epitomizes what we should all try to be with the way she is caring for others and putting others concerns first.

Maryn loves little stuffed animal toys and to play with her four sisters. Maryn also likes to watch her favorite cartoon called, "Calliou". Maryn loves the color pink and is always wanting to color in her coloring books.

Maryn and her Mother have gone "RAW" in hopes of not feeding this terrible tumor. Please go to this site and donate. There is also a link to her mother's blog which gives up to date information on how Maryn is doing.