Thursday, June 18, 2009

Zac Attack........................



On June 9th 2008 my youngest of 4 children, Zachary, was diagnosed with a brain tumor - DIPG. We did our first round of chemo (Motexafin Gadolinium) and radiation. We got through the holidays fairly well. We are now doing the Avastin/Irontecan. We are still praying for our miracle and believe that it will happen.

Zachary will be starting radiation and chemotherapy the week of the 23rd. We will be traveling every day to and from St Louis as his treatments will be done as an out patient. He is very thankful for this as he can sleep in his own bed and see his brothers, sister, family and friends every day.

They told us the side affects should not stop him from swimming and playing ball. He was very excited to know that he will be able to continue playing sports. As anyone that knows Zac, knows that sports are very important to him.

We would like to thank everyone for their support and help through this hard time in our life. With your thoughts and prayers and Zac's awesome positive attitude we will get through this! We know the odds, but that doesn't matter to us. We know in our hearts that Zac will win. He is too special not to. Even as bad as he knows he has it - he continues to be the same giving and caring little boy he has always been. Keep us in your prayers.

When we know more details I will post more information.

We found out we are headed to St Louis on Thursday the 19th at 8:00 a.m. We will be getting ready for his treatments. We should be home Thursday afternoon. The treatments will begin either Monday or Tuesday.

ZAC IS LOOSING HIS BATTLE WITH THIS AWFUL BRIAN TUMOR. HE LIKELY HAS DAYS LEFT ON THIS EARTH PLEASE READ THE LATEST UPDATES:

  • Thursday, June 18, 2009 7:50 AM, CDT

    Zac is still hanging in there. He is sleeping more, he only woke up a couple times yesterday and for not any length of time. He has been so strong, he's an amazing little guy.

    The storms last night were scary. Meagan, Tyler and Brandon were right in the heart of them coming back from Tyler's game. Thankfully they were with Jenny, Jill and John and they were able to get to a safe spot!! Here at home Jason and I had a plan if needed to get to a basement. We were told not to move Zac unless it was absolutely necessary, so we had my purse on his bed with the medicine pumps, extra bag of IV fluids and had the oxygen tank in the van ready to go. Luckily our house escaped the danger of tornados!!!

    Tyler is suppose to have another game tonight at New Bloomfield. Not sure how there fields look after last night.

    Keep praying for our miracle. It can still happen! Please don't forget all the other sick children. Not just the DIPG kids, but all the kids with cancer and illiness. No matter how big or small, you never know.............
  • Tuesday, June 16, 2009 8:45 PM, CDT

    Zac is still holding his own. He keeps amazing us. He was awake today for over an hour today. Tomorrow will be a big day, when the nurse gets here we have to change everything out, so please no phone calls or visitors between 12:00 and 1:30 if possible.

    We want to thank our church members and friends for the meals that they have been bringing over.
  • Tuesday, June 16, 2009 10:02 AM, CDT

    Zac is still holding his own. The good Lord is holding him and keeping him safe. All we can do is be here for him, hold him, and pray for the best thing for Zac, healing.

PLEASE GO TO HIS WEBSITE AND LEAVE SOME ENCOURAGING WORDS FOR HIS FAMILY!!!!!!!! HIS LINK IS TO THE RIGHT!!

2 comments:

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  2. My husband is going through chemo at the moment, we have to travel to Saint Louis to do it as well. Small world, scary small world.

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