Monday, August 31, 2009

Urgent Prayers for Lucas Nelson

This gorgeous little boy was diagnosed two months ago with ATRT. He had one tumor in his spine. He has been given high dose chemo at Primary Childrens Hospital. When they did an MRI things looked good, the tumor was responding. Then all of the sudden he seemed to be in pain. Another MRI was preformed two weeks later and the cancer had spread throughout his spine and into his brain. Lucas was sent home.

This is the latest post..

Lucas slipped into a Coma sometime in the afternoon yesterday, Sunday, as he was being held by loved ones. Our hospice nurse came out last night to confirm his unresponsive state as a Coma. We are grateful to all who have come to visit and as always to all those who have been Angels to us throughout Lucas' struggle. Our faith is strong, but our hearts are broken. We feel a calm assurance that Lucas will be fine and soon will be with his Father in Heaven and his Savior. We lovingly and respectfully ask that visits be limited to immediate family and please understand that we would love to visit with everyone, but our time with Lucas seems limited. We appreciate your continued prayers for our family as it has given us much strength and support. I wish we could give more personal responses to all of your comments and acts of kindness, please take this as our way of saying thank you from the bottom of our hearts.
Lucas is a very special boy sent to unlock the love in people's hearts and teach us lessons we might not otherwise learn. It seems his mission is drawing to a close. We love you our friends. Thank you.
Please go to this site and leave some messages....

Sunday, August 23, 2009

Angel Llimaya...................

Forever in our hearts

Posted Aug 17, 2009 4:57pm

I am sorry to inform everyone with the news of Maya's passing. Yesterday, things changed so quickly. Her sodium levels were low which caused her to have seizures. We kept trying to correct it but it seemed that it was not holding her. We decided to stop trying and shut off the monitors and enjoy our moments with her. At this point her oxygen level had began to decrease. We sat there for hours and hours as she gasped for breaths. She looked comfortable, pain free. She continued the morphine drip for pain and was given a few medications to help prevent seizures. It was at the point where we wanted her to go in peace. We were in the room staring at each other as we waited and waited for her to go. She still wanted to fight. This morning she did not lose her battle to cancer. She stuck cancer right through and held her head high! She was in the arms of many loved ones. She passed away at 8:40 in the morning. She slept right through. Services will be held on Wed. We will repost for details. Thank you so much for your support. email us suggestions as we start our celebration of her life.

Her Bio...............

It always strikes as a shock that all can change in the matter of seconds. In our case, just one moment.Llimaya was hospitalized for the first time on November 2nd, 2008 for a tumor in her brain. It is located in her right cerebellum ( the part of your brain that controls the function of your movement). The tumor affected her central nervous system causing damages to some of the abilities she used during her everyday life. They placed her on a steroid to help reduce the swelling of her brain. Thursday November 6th, 2008 there was a surgical goal for the benefit of this severe scare. The Neurosurgeons were performing a biopsy and were in attempt to remove enough of the tissue from the tumor to release pressure off of the brain. The surgical goal was met and they were able to remove enough of the tumor to keep her safe until further treatment. Although, it was not a total resection, it was enough to buy time for us to enjoy. The diagnosis was ATRT, a highly malignant tumor that appears in pediatrics. She was discharged and able to go home after the surgery. She enjoyed being home with her family and made use of her time with DORA THE EXPLORER! We returned prepared for our journey and our fight. She has multiple sites. The more sites the harder to treat. She has about 3 tumors that you could measure and other what appears to look like a spray painted coating of tumor cells that could actually form a solid mass. Cancer will be administered through her port a cath (central line), double lumen (central line), and ommaya reservoir ( catheter in the brain that lets chemo flow through your cerebro spinal fluid).


Tuesday, August 11, 2009

Angel Alexa Brown................

Thursday, August 6, 2009 5:58 AM, CDT

Family, loved ones, friends and those who have prayed so faithfully for Alexa.

Alexa is watching over all of us from Heaven this morning. She went home to be be with Jesus this morning at 4:00 a.m.

God's blessings and peace be on all of us as Alexa and all of us start a whole new journey.

I know her words, if we could hear them, would be, "Thanks for loving me. Don't worry. I'm good. I found Grammie, Pop Pop, Pa and T.C. I will watch over all of you. I love you more than you'll ever know."

We can all rest easy knowing that Alexa will forever be protected by Jesus and a host of family members that have gone on before us.

Love to you all,

Amanda, Abby, Ethan, Wendy, Warren and special love from Alexa

I know I am late with this post but this wonderful family could use some encouraging words. Please go to her site